The federal government has released its promised framework to guide the secondary use of My Health Record system data, appointing the Australian Institute of Health and Welfare (AIHW) as the data custodian and ruling out the use of system data for commercial or non-health-related purposes or by insurance companies.
The framework details a very lengthy process that researchers wanting to access de-identified data will have to go through, which will be overseen by an independent board involving a range of independent experts.